This video was live streamed into our Facebook group (PSC Support UK), giving members the chance to get answers to their PSC-related questions. It had 710 views in Facebook before we uploaded it to YouTube!
It's so important for people living with PSC to hear about the experiences of others in a similar position. That's why we were very grateful to Clare Blake, June Lord and Maxine Tapp, who joined us to talk about their own experience of PSC and liver transplantation.
Topics covered include getting recurrent PSC, how it feels to be listed for transplant, talking to children about transplant and the difference a transplant can make.
Check out our completely re-written, comprehensive PSC information, fully referenced at pscsupport.org.uk/
- Ask the Expert: PSC and Liver Transplant Patient Experience (PSC Support) ( Download)
- PSC Support Ask the Expert: Dr James Ferguson - Liver Transplantation for PSC ( Download)
- Does everyone with PSC need a liver transplant Primary Sclerosing Cholangitis (PSC Support) ( Download)
- Gary Taylor: My PSC Transplant Experience (PSC Support) ( Download)
- Ask the Expert: Dr Andrew Yeoman Liver Blood Tests (PSC Support) ( Download)
- Dr James Ferguson - Liver transplantation and PSC (PSC Support) ( Download)
- The Patient Experience - Yvonne Obeng ( Download)
- Mark Chatterley - My Health Journey (PSC Support) ( Download)
- Why do some people with PSC experience pain around the liver area Primary sclerosing cholangitis ( Download)
- Professor Michael Heneghan - Pregnancy in PSC and Liver Transplantation (PSC Support) ( Download)
- 9 Ask the Expert with UK-PSC - How many PSC patients are there (PSC Support) ( Download)
- Ask the Experts – Primary Sclerosing Cholangitis ( Download)
- Ask the Expert: Dr Kathy McKay PSC and Wellbeing (PSC Support) ( Download)
- Maxine C - Living with PSC: A Patient's Perspective (PSC Support) ( Download)
- Liver Transplant: The Tough Questions ( Download)
